Many sources of information exist on the internet. Several sites include information that may be useful to individuals living with MS. The links provided in this article are intended to help interested people to find credible sources of information. The information on the sites is the responsibility of the individual site authors, and not under the control of cochiseability.org. Information provided here about the authorship of each site was gathered from the material on those sites, and is current as of June 4, 2003.

http://www.msnews.org/ International MS Support Foundation, Jean Sumption.

The IMSSF is:

Independent of all other Multiple Sclerosis (MS) organizations

Staffed entirely by volunteers who have been diagnosed with MS

A non-profit IRS 501(c)3 Charitable Organization that meets the standards of all major agencies that rate nonprofit groups

We pride ourselves in running a non-profit organization with an all-volunteer staff. As a result, the IMSSF is cost-effective and extremely productive. Ninety-percent of contributions received are applied to programs that assist people with MS.

http://www.nmss.org/ National MS Society

What is special about the National Multiple Sclerosis Society?

The National Multiple Sclerosis Society supports more MS research and serves more people with MS than any other MS organization in the world.

Through the Society’s fifty-state network of chapters, assistance is provided to over a million people annually.

http://www.dsw.nmss.org/ Desert Southwest Chapter of the NMSS

The Desert Southwest Chapter of the National Multiple Sclerosis Society, founded in 1956, is a not-for-profit agency serving more than 4,700 people with MS and their families in Arizona. The Desert Southwest Chapter is here to serve you through education, information and referral, counseling, assistance with employment concerns, social activities and more. Chapter programs are made possible by fundraising success. The major fundraising campaigns are: The MS Walk, The MS 150 Bike Tour and Dinner of Champions. Over 1,000 volunteers give their expertise and time to the Desert Southwest Chapter serving on the board, leading support groups, raising funds, and many other tasks.

http://www.msfacts.org/ MS Support Foundation

The MSF, a publicly funded 501(c)(3) organization, was established in 1986. With national headquarters in Fort Lauderdale, Florida, the MSF employs the concept of utilizing a centralized location to serve the nation. By eliminating the need for branch offices, while networking with independent local grass roots organizations, we are able to maintain a more cost-effective and efficient operation while providing the highest quality of service.

“The scope of our services goes beyond that of a clearinghouse of pamphlets. Our priority is to serve with empathy, resourcefulness, and responsibility. We are here to listen, assist, and empower.”

http://www.msaa.com/ Multiple Sclerosis Association of America

The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization dedicated to enhancing the quality of life for those affected by multiple sclerosis. MSAA provides ongoing support and direct services to individuals with MS and their families. MSAA also serves to promote greater understanding of the needs and challenges of those who face physical obstacles.

Since 1970, MSAA’s philosophy and efforts have focused on improving the quality of day-to-day life for people with MS and their families. MSAA relies heavily on volunteer efforts and the ongoing support of the general public.

http://www.mscare.org/ Consortium of MS Centers

To be the pre-eminent organization of Multiple Sclerosis health care providers improving the lives of those affected by multiple sclerosis.

CMSC provides leadership in clinical research and education; develops vehicles to share information and knowledge among members; disseminates information to the health care community and to persons affected by Multiple Sclerosis; and develops and implements mechanisms to influence health care delivery.

http://www.msif.org/ Multiple Sclerosis International Federation

The Multiple Sclerosis International Federation welcomes you to the World of MS.

A comprehensive, international and up to date information resource developed by MS experts worldwide.

http://www.mult-sclerosis.org/ Multiple Sclerosis Information Trust, Paul Jones.

The Multiple Sclerosis Information Trust is a charitable organization that has been formed to run the website, All About Multiple Sclerosis (www.mult-sclerosis.org). This has been run since 1999 by Paul Jones, a person with MS, who has become an expert in the medical aspects of the disease. This gives the site a unique perspective and focus unavailable to physicians or to other websites. It provides the most comprehensive and up-to-date MS news gathering service on the Web and an extensive encyclopaedia of medical information, translated into plain English and written from the perspective of a person with MS. The website provides a detailed description of the disease and the latest information about MS medical research. It also addresses the personal and emotional issues involved in living with MS.

The overriding purpose of the site is to help people understand their disease and to provide news of forthcoming medical innovations. The information provided is not prescriptive but aims to help people with MS come to decisions based on accurate information combined with their own life situation.

http://www.avonex.com Drug manufacturer site (Biogen)

This site is sponsored by Biogen, manufacturer of AVONEX and provides information about the drug.

http://www.msactivesource.com/ MS support by Biogen, makers of AVONEX

MS ActiveSource is a service mark of Biogen, Inc. AVONEX® is a registered trademark of Biogen, MS ActiveSource gives you free access to caring MS support specialists who can provide assistance.

http://www.betaseron.com/ Drug manufacturer site (Berlex)

This site is sponsored by Berlex, manufacturer of betaseron and provides information about the drug.

http://mspathways.com MS support by Berlex, makers of Betaseron.

This site is sponsored by Berlex, manufacturer of betaseron. MS PathwaysSM is a support program for everyone touched by multiple sclerosis (MS) - patients, families, and friends. Whether a person has just been diagnosed with MS or has been living with the disease for some time, patients face many challenges.

http://www.copaxone.com Drug manufacturer site (Teva Neuroscience, Inc.)

This site is sponsored by Teva Pharmaceutical Industries Ltd, the manufacturer of Copaxone. COPAXONE® is a registered trademark of Teva Pharmaceutical Industries Ltd. The site includes information about the drug along with “Valuable help, whether you take COPAXONE® or not. If you are not currently taking COPAXONE®, you can receive many valuable Shared Solutions® services, excluding those specifically related to initiating and maintaining COPAXONE® therapy.”

Shared Solutions®, Shared Perspectives® and MSWatch® are registered trademarks of Teva Neuroscience, Inc.

http://www.mswatch.com/ MS support by Teva Neuroscience, makers of Copaxone

MSWatch® is a registered trademark of Teva Neuroscience, Inc. With MSWatch® you can:

* Communicate with others through Chat, Messages and Discussion Boards.
* Learn more about MS through the MS University, Ask an Expert, Library, Member Tips, MSXpress Newsletters, Feature Stories and more!
* For those with MS, there is a specially designed electronic Planner where you can track appointments, medications, exercise, therapy or other events in the fight against MS.
* Additional activities on MSWatch® include Humor, Personal Stories, My Journal, Graphs, MS & Health News, Community News, Vote, Postcards and more!

http://www.rebif.com Drug manufacturer site (Serano)

Forwards user to www.mslifelines.com, a site created by Serano, Inc. the manufacturer of rebif.

http://www.mslifelines.com/ MS support by Serano, makers of Rebif.

This site is sponsored by Serano, Inc. the manufacturer of rebif, and contains information on rebif drug therapy as well as general support and information for individuals with MS.

http://www.infosci.org/

Infosci's Home Page
The first web site in the world devoted to Multiple Sclerosis, established 1994, includes numerous links to sources of information about MS.

http://www.myelin.org/ The Myelin Project aims to accelerate research on myelin repair. (Started by the family portrayed in Lorenzo’s Oil)

The Myelin Project aims to accelerate research on myelin repair. Myelin, the white matter insulating the nerves, allows the conduction of impulses from one part of the body to another. It can be destroyed by hereditary neurodegenerative disorders, such as the leukodystrophies, and by acquired diseases such as multiple sclerosis. All together, demyelinating diseases affect an estimated one million people in the industrialized countries alone.

http://www.understandingms.com/Consumer developed site, supported by grant from Biogen, makers of AVONEX

UnderstandingMS.com delivers current information on multiple sclerosis, and enables people with multiple sclerosis to make informed treatment and quality of life decisions. All the content on UnderstandingMS.com is created by recognized thought leaders in the field of multiple sclerosis. These leading medical experts come together with celebrities and patients to offer users a full range of information about treatments, lifestyle issues, new research, and more. Streaming video programs, with full text transcripts, combined with complementary, expert-authored articles create a rewarding online experience. A resource for patients and families, UnderstandingMS.com provides timely information about a very important disease.

www.MSnetguide.com A patient's Guide to Multiple Sclerosis Websites was produced by Intellisphere, LLC under an unrestricted grant from Berlex Laboratories.

The Internet is full of information, some valuable, some not. The trick to using the Internet successfully is easy – make sure every site you go to is dependable, informative, and useful. Easier said than done, right? That’s why the editors of Multiple Sclerosis: A Patient’s Guide to MS Websites created MSnetguide.com, a website devoted specifically to providing links to the best of online MS information for patients, family members, friends, and caregivers.

On this site you will find links to MS associations and organizations, professional neurology and MS journals, chat forums and message boards, clinical trial listings, insurance information, and general information about MS. Also available is the original MS Patient’s Guide that includes brief descriptions of the sites profiled.

http://medstat.med.utah.edu/kw/ms/ Intro to MS for medical students, copyrighted - Spencer S. Eccles Health Sciences Library

This site is designed as an introduction to multiple sclerosis for medical students and physicians in training. It is not a comprehensive guide to the disease. As such the information may not be sufficient to address specific patient problems and these should be handled by physicians familiar with the specific clinical details relevant to the individual patient. We invite comments from all users of this site. Copyrighted - Spencer S. Eccles Health Sciences Library

http://www.mscrossroads.org/

Extensive list of links related to MS, collected by Aapo Halko.

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